Get to know Jayne Gershkowitz, Chief Patient Advocate at Amicus Therapeutics
TRNDS 2019 speaker, Jayne Gershkowitz is a passionate advocate and expert in a wide variety of issues affecting individuals with rare diseases and their families.
May 18, 2019 | Taren Grom | WOW Podcast, PharmaVOICE
Jayne C. Gershkowitz joined Amicus in June 2006 and currently serves as Chief Patient Advocate. She founded Amicus’ Patient Advisory Boards program and manages Healing Beyond Disease™. She is a long-time patient advocacy professional with expertise in the LSD and broader rare disease community. Previously, Ms. Gershkowitz served as Executive Director at the National Tay-Sachs & Allied Diseases (NTSAD) Association. Her earlier career experience encompasses newspaper journalism; corporate and non-profit marketing communications; and social services.
Ms. Gershkowitz is active in several rare disease and biotech organizations as well as industry, association and nonprofit boards and committees, including: founding chair of BioNJ’s Patient Advocacy Committee; co-founder and board member of Professional Patient Advocates in Life Sciences (PPALS); and former vice-chair of the Board of Directors of the National Organization for Rare Disorders (NORD). She is also part of the Board of Trustees of the Healthcare Institute of NJ (HINJ); BIO’s Government Relations and Rare Disease specialty committees; Together Strong; and the Corporate Alliance of Global Genes. Ms. Gershkowitz was a PharmaVOICE 100 honoree in 2018 and “Heart of BioNJ” Award recipient in 2019.
Program Director, Office of Rare Diseases Research, National Center for Advancing Translational Sciences, NIH