TRNDS Leadership

Meet the TRNDS co-chairs and planning team from the University of Rochester

Erika Augustine, TRNDS, UR

Erika Augustine MD, MS

Co-Chair, TRNDS; Associate Director, Center for Health + Technology (CHeT), University of Rochester

Bio

Dr. Augustine is the Robert J. Joynt Associate Professor of Neurology, Pediatrics, and the Center for Health + Technology (CHeT) at the University of Rochester. Following residency training in Pediatrics and Pediatric Neurology at Harvard University/Boston Children’s Hospital, Dr. Augustine completed dual fellowships in Pediatric Movement Disorders and Experimental Therapeutics, with a focus on clinical trial design.

Dr. Augustine specializes in the care of children with movement disorders. Her clinical research program focuses on advancing therapeutic development for rare pediatric neurological disorders, with emphasis on comprehensive clinical phenotyping and trial design. Dr. Augustine leads clinical programs developing novel therapeutics for the neuronal ceroid lipofuscinoses (Batten diseases), a group of rare pediatric neurodegenerative disorders.

Scott Steele, University of Rochester, TRNDS

Scott Steele PhD

Co-Chair, TRNDS; Director, Regulatory Science Programs, Clinical & Translational Science Institute, University of Rochester

Bio

Scott Steele, PhD is the Director of Regulatory Science Programs in the Clinical and Translational Science Institute at the University of Rochester and associate professor in the Department of Public Health Sciences. Prior to joining the University of Rochester, he served in the White House Office of Science and Technology Policy. He completed his MA and PhD in Molecular Biology at Princeton University. Dr. Steele develops and leads regulatory science and translational science programs, including as Director of the Regulatory Science to Advance Precision Medicine Initiative that evaluates emerging science and regulatory considerations for areas such as digital health, biomanufacturing, regenerative medicine and genomics. He currently serves on the FDA Science Board.

Jeanne Paiko
Center Administrative Manager, CHeT

Anna Stevenson
Associate Project Manager, CHeT

Grace Zimmerman
Research Associate, TRNDS Coordinator, CHeT

TRNDS 2019

University of Rochester
Saunders Research Building
Helen Wood Hall Auditorium
255 Crittenden Blvd
Rochester, NY 14642

Date: Friday, September 13
Time: 7:30 am – 4:00pm

TRNDS News

Sign-up for TRNDS updates and rare disease news

  • New Grants will Accelerate Clinical Trials in Rare Neurological Disorders
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  • Neurogene Offers Access to Genetic Testing for Lysosomal Storage Disease
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  • NIH launches 5-year, $10 million study on acute flaccid myelitis
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  • Study refines ALS risk among first-degree relatives of patients with disease
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  • NCATS Director Warns of 'Poorly Understood Public Health Implications of Rare Diseases'
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  • Speeding Up Drug Discovery for Brain Diseases
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  • NIH-Funded Project Aims to Build a ‘Google’ for Biomedical Data
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  • Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate
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  • Jsyne Gershkowitz, Amicus Therapeutics, TRNDS 2019
    (Podcast) Get to know Jayne Gershkowitz, Chief Patient Advocate at Amicus Therapeutics
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  • PJ Brooks, NCATS, NIH, TRNDS
    Meet TRNDS 2019 Speaker PJ Brooks
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  • Rare Pediatric Disease PRVs: FDA Updates Guidance
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  • Batten Disease Study
    Neurogene Opens Natural History Study of CLN7, CLN5 Diseases at UT Southwestern
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  • C-Path and NORD Collaborate to Launch Rare Disease Data Platform
    READ MORE
  • TRNDS 2019 speaker Tauna Batiste, BDSRA
    Meet TRNDS Speaker Tauna Batiste
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  • HD Patients Prefer Less Invasive, No-Placebo Gene Therapy Trials
    READ MORE
  • Evidation & Eli Lilly Study Uses Apple Devices, Apps to Predict Cognitive Impairment
    READ MORE
  • 'Dr. Google' Helps Some Patients Diagnose a Rare Disease
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  • Antisense Drugs for HD, ALS & Prion Could Meet the Need for Brain Treatments
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  • Ultragenyx Partners with GeneTx to Advance Treatment for Angelman Syndrome
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  • Netflix's Medical Investigation Docuseries 'Diagnosis'
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  • NIH All of Us Project Tops 270,000 Sign-ups
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  • FDA Cancer Office Taps Syapse for Real-world Evidence Development
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  • Gene Linked to Rare Neurological Disorder May Play a Role in Alzheimer’s
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  • Gene Therapy Developers Issue Principles for Human Genome Editing
    Gene Therapy Developers Issue Principles for Human Genome Editing
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  • Forget Single Genes: CRISPR Now Cuts & Splices Whole Chromosomes
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  • Benjjamin Schlatka MC10 TRNDS
    TRNDS Speaker Benjamin Schlatka, MC10
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  • TRNDS Danielle Edwards Jett Foundation
    TRNDS Speaker Danielle Edwards, Jett Foundation
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  • His daughter has a rare disorder. He’s developing a novel gene therapy.
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  • A Doctor Tested a New Treatment on Himself, Now it's Saving Other Lives
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  • Study Presents Clinical, Genetic Landscape of Pompe Disease
    READ MORE

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TRNDS Speakers

Room Block

Hilton Garden Inn
Rochester/University
Medical Center

30 Celebration Drive
Rochester, NY 14620

Phone: 585-424-4404

TRNDS Rate: $149/night