Latest News

Stay informed of current rare disease news and TRNDS updates.

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    Gene Silencing Shows Promise for Treating Two Fatal Neurological Disorders
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    University of Rochester Neurology Celebrates 50th Anniversary
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    International Consensus Addresses Research Bottlenecks to Diagnose Rare Genetic Diseases
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    TRNDS Interview with Ira Shoulson
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    Prepare for the Digital Health Revolution
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    BREAKING: ALS Treatment gets FDA Approval
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    TRNDS Interview with Dave Jacob
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    Here’s What Your Future Doctor Visits Could Look Like
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    PatientsLikeMe Partners with Shire Pharmaceuticals
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    Interview with Amanda Christini, Blackfynn
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    AAN 2017; Spinraza Data for SMA Continues to Impress
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    FDA Approves First Treatment for a Form of Batten Disease
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    How Multiple Platform Marketing Spread Rare Disease Awareness
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    TRNDS Interviews Maria Picone
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    Biotechs take lead in a new push against neurological disorders
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    MS PATHS: Harnessing Real-Time Patient Data to Reshape MS Care and Research
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    Interview with Jane Rhodes
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    The partnership of patient advocacy groups & clinical investigators in the rare diseases clinical research network
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    The Importance of the Patient Voice
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    Exclusive Interview with Wendy White
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    Ethical Issues of Research Recruiting on Social Media
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    Ethics & Privacy Implications
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    Rare Diseases: Meeting the Unique Challenges of Orphan Drug Development
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    The Benefits of Digital Health for Rare Disease Research
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    Newest ResearchKit Study Focuses on a Rare Disease
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    Luke Gelinas Interview
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    Seeker Health Interview

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255 Crittenden Blvd.
Rochester, NY 14692

Details

Friday, May 12, 2017
7:30am - 3:45pm
Saunders Research Building
Hellen Wood Hall

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