Technology & Rare Neurological Diseases Symposium

RETURNING IN FALL 2019!

Technology & Rare Neurological Diseases Symposium

About TRNDS
The University of Rochester, a national leader in rare diseases clinical research and therapeutic development, will host a day-long symposium on novel applications of technology to accelerate the development of new therapeutics for patients with rare neurological disorders.

Attendees will learn from a cadre of industry leaders in rare diseases, health technologies and clinical trials as they demonstrate how to:

leverage new tools and technologies to enhance patient partnership
reduce the burden of participation in clinical research
accelerate development of new therapeutics

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Past Speakers

Regional and national leaders in rare diseases, health technologies and clinical trials

Erika F. Augustine

Associate Director, URMC Center for Human Experimental Therapeutics

Arthur Combs

Chief Medical Officer, mc10

Ray Dorsey

Director, URMC Center for Human Experimental Therapeutics

Tim Ehrhard

Director of Information Technology, National Organization for Rare Disorders

Jennifer Farmer

Executive Director, Friedreich’s Ataxia Research Alliance

Luke Gelinas

Petrie-Flom Center/Harvard Catalyst Fellow, Harvard Law School

Dave Jacob

CEO, ThinkGenetic

Karl Kieburtz

Director, URMC Clinical & Translational Science Institute

Deborah Kilpatrick

Chief Executive Officer, Evidation Health

Craig H. Lipset

Head of Clinical Innovation, Pfizer

Michael O’Brien

President, Clinical Trials Division AMC Health

Spyros Papapetropoulos

VP & Global Head of Neurodegeration, Movement Disorders & Clinical Research Transformation, TEVA

Maria Picone

Founder, TREND Community

Jane Rhodes

Senior Director, New Initiatives, Innovation Hub at Biogen

Kristin Schneeman

Director of Programs, FasterCures

Ira Shoulson

Director, Program for Regulatory Science & Medicine Georgetown University

Sandra Shpilberg

Founder & CEO, Seeker Health

Komathi Stem

Founder & CEO. monARC Bionetworks, Inc.

Wendy White

Board Chairman, Global Genes Senior VP of Rare Disease, Dohmen Life Science Services

Latest News

Stay informed of current rare disease news and TRNDS updates

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Gene Silencing Shows Promise for Treating Two Fatal Neurological Disorders
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University of Rochester Neurology Celebrates 50th Anniversary
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International Consensus Addresses Research Bottlenecks to Diagnose Rare Genetic Diseases
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TRNDS Interview with Ira Shoulson

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